I have to say, more than 2 months into the gluten free diet thing, that I'm actually feeling better. I feel better now than I did last week, and last week I felt better than the previous week!
I still use the wheelchair, but I'm able to stand up longer (a little bit longer anyway) and I can walk a tiny bit further now. I still have the occasional headache, but before I started the diet I had the headaches every day! My hands don't shake anymore, at least, very rarely now. There are just so many areas of improvement....I'm really starting to hope that someday I'll feel totally normal again!
I know I was feeling disappointed because I wasn't feeling great IMMEDIATELY, but obviously you have to give the diet time to work!
Any improvement is definitely worth any amount of hassle that the gluten free lifestyle causes!