I complained about my lack of a "real" diagnosis in one of the forums at celiac.com, and got several replies that indicate that many, many people are in the same boat. For one reason or another, they do not have the "absolutely certain" diagnosis of celiac disease, but their doctors felt that all available signs pointed to celiac, and gave them that diagnosis anyway.
I guess that I can accept a less-than-certain diagnosis. After all, I have a granddaughter with celiac disease; I have the right genetics to develop celiac disease; I have the symptoms when I eat gluten; I already have MULTIPLE autoimmune diseases, including Hashimoto's thyroiditis which is frequently associated with celiac; I have osteopenia and several nutritional deficiencies that show in my bloodwork....in other words, I have all of the risk factors and indicators. I just don't have the antibodies or the villi damage! And that can be due to the prednisone I'm taking.
OK...I accept it. I do have celiac disease, confirmed by dietary response and other factors.