Saturday, January 24, 2009

Is the GF diet helping?

Warning: this post is mostly a discussion of my health....could be excruciatingly boring.

OK, I figure it's time to step back and assess the big picture again; I've been on the gluten free diet for 2 months now. So, do I feel better yet?

I always have to keep in mind what so many people like myself (with multiple autoimmune diseases plus fibromyalgia) have shared in the forum on that it literally took them years to feel normal again, if they ever healed completely (some people apparently don't).

But even at this early stage I have to say, YES, I do feel a little bit better! I definitely have a little more energy; I still get sleepy during the day but my overall fatigue level isn't as bad as it was. My headaches are fewer and milder, my hand tremors are mostly non-existent. The muscle cramps in my feet, legs, hands, etc., occur very seldom now.

And my brain fog is GONE!! HOORAY!!

Those nasty GI symptoms are still with me from time to time, but the episodes of "D" are fewer and farther between; they may be happening because I've been glutened, or even because of the antibiotic I'm taking right now.

The big disappointment for me is that the conditions which keep me in a wheelchair much of the time have not improved. Not at all. :(

I still have the severe lower back pain and extreme muscle stiffness in my legs (which I've been assuming are due to fibromyalgia) that prevent me from walking very far or standing for more than a few minutes at a time. Of course, maybe I just haven't been on the gluten-free diet long enough yet?

Don't get me wrong....I do feel that ANY improvement in the way I feel makes the GF diet totally worth it! Just getting rid of the muscle cramping alone is sufficient reason!!

I will TRY to be patient!!


Anne said...

Great to hear that you are feeling better. A couple of other suggestions.

Taking an antibiotic? Don't forget to add a probiotic to recolonize the gut with good bacteria.

Have you had nutrient levels checked? B12, B6, folate, iron, zinc call all be low from malabsorption. Almost everyone is deficient in vitamin D. Low vitamin D can cause muscle weakness and increase pain. You can read more about micronutrients on There are links on the right side at the bottom.

I hope you continue to heal.

JoAnn said...

Thanks Anne...I'm having a physical next month, so I'll ask the doctor to check nutrient levels.

After a blood test several months ago I was told that my vitamin D was low so I've been taking supplements.